
NICU 101 with Mary Farrelly of The NICU Translator: Podcast Episode #278
Kristin Revere talks with Mary Farrelly, CEO of The NICU Translator.Ā Mary gives expert advice on navigating the NICU. \
Hello, hello!Ā This is Kristin Revere with Ask the Doulas, and I am thrilled to chat with Mary Farrelly.Ā She is the owner at The NICU Translator, and our topic is all about NICU 101, what every pregnant person should know about the NICU.
Now letās hear about Mary.Ā Sheās a certified NICU nurse, a doula, a nurse educator, and as I mentioned earlier, founder of The NICU Translator.Ā With over a decade of experience as a Level 4 NICU nurse, Mary empowers families and professionals through evidence-based education, individualized NICU doula support, and specialized NICU training programs for doulas and other support professionals.Ā Mary is passionate about reducing trauma and enhancing the NICU experience.Ā She is dedicated to helping families and support professionals alike navigate the NICU journey with confidence and compassion.
Welcome, Mary!
Thank you!Ā Iām so glad to be here!
I am so excited to talk about preparing for the NICU.Ā I feel like our listeners, unless it is a known medical concern where they have the time to prep, arenāt necessarily educated and informed on what a NICU stay may look like.
Yeah, that is very common.Ā The March of Dimes did a study a little while back.Ā They looked at a bunch of childbirth education courses and prep work and birth classes, and only 10 to 15%Ā even mentioned the NICU at all, much less giving more in depth knowledge about the topic, which is really not fair because the statistic is that about one in ten babies born in the United States every year will have a NICU stay.Ā So it is something that is important to just talk about a little bit prenatally, not from a place of fear, but from a place of empowerment and informed decision-making.Ā Itās still an important topic to think about as youāre planning a pregnancy or are pregnant and thinking about your birth journey.
Exactly.Ā And my daughter had a short NICU stay, so I know from personal experience that it can be overwhelming, especially with your first child.Ā I had preeclampsia and was induced at 39 weeks, and she had some minor glucose issues, but still, when you imagine rooming in with your baby and being able to breastfeed and then everything changes, it is quite overwhelming.
Yeah, itās definitely not something that most people put into their birth plan, although Iām kind of on a mission to change that a little bit.Ā It definitely totally changes the experience.Ā Exactly what you mentioned, from what you imagined it to be and what you feel like it should be.Ā It just looks different when the NICU is involved.Ā One of my passions is to make it less traumatic and still bring the joy into the NICU experience, but no matter what, itās still going to be different than what a lot of people imagine.
Exactly.Ā So letās get into your tips for preparing, as far as a potential NICU stay, and just an understanding of what that experience is like for parents.
Sure.Ā So one of the things that I love to do with my own doula clients is ā if youāre a birth doula or even a postpartum doula, youāre going to be talking through preferences and different options, maybe for where you want to labor, what pain control might look like, what you want your postpartum experience to look like.Ā And I like to bring the NICU into that conversation, and I like to use what I call the fire drill model.Ā I say, like, hey, just because ā my daughter is in kindergarten ā just because they do a fire drill at school doesnāt mean theyāre manifesting a fire.Ā It doesnāt mean a fire is going to happen.Ā It just means that if a fire does happen, they know what to do, and itās going to be a much more controlled and less chaotic and safer experience.Ā So today weāre going to talk a little bit about the NICU and what that might look like, so if it is part of your story, then again itās not going to be this total out of body, shock, overwhelm experience.Ā Youāre going to have a little bit, some grains of understanding about the NICU so you can then continue your journey through empowered parenting and informed decision making and not feel quite so overwhelmed by it.
Thatās how I like to frame the conversations about it, but one of the most important things that most people donāt understand about the NICU, and I wish more did, is that there are different levels of NICU care, and if you take anything away from this conversation, I feel like this is just something to understand, either if you work with families or you are pregnant.Ā Specifically in the United States, but itās pretty universal ā every country that has a NICU has some different type of level system ā but in the United States, thereās level one through four.Ā And a Level 1 NICU is basically just newborn care, so itās a newborn nursery.Ā Basically, any type of hospital that has a labor and delivery unit has the ability to resuscitate and stabilize an infant.Ā But those Level 1 NICUs cannot continue care if the baby needs anything beyond basic newborn care.Ā If your hospital has a Level 1 and your baby has glucose issues or maybe difficulty breathing or just needs extra monitoring or support, they would need to be transferred to a higher level of care.Ā That might look like a Level 2, 3, or 4.
A Level 2 is sometimes known as a special care nursery.Ā That is going to be more for what we call in the NICU a feeder-grower.Ā So maybe a 34, 35, 36 weeker that just has maybe some needs for learning how to eat, maybe needs a little bit of time, say, learning how to stay warm on their own, but doesnāt really have any complex needs for respiratory support, testing, or monitoring.Ā And then Level 3 is more of your general NICU care.Ā They can take care of most babies down to 23 weeks all the way through term.Ā They can do many different types of surgeries, respiratory support, things like that.Ā But even some of those NICUs are limited in the type of support that they can deliver, so the top level of care is called a Level 4 or also is known as a regional NICU.Ā In some states, there are two, three, four.Ā California might have many more than that.Ā But in general, thereās not that many of them, and they typically are associated with an academic or childrenās hospital.Ā So they might be pretty far away from where you are delivering or where you live.Ā So itās helpful just to know what NICUs are in your area and know what the transfer pattern is.Ā Because what I see ā I work at a Level 4, and I see families just totally shocked that their baby is not just in the NICU, but there in an entirely different facility than they are.Ā That overwhelm can just be really, really daunting for people going through that experience.
Absolutely.Ā I felt like it was overwhelming enough to be in the same hospital system and go back and forth from my postpartum room to the NICU.
Of course, yeah.Ā The reality of the NICU experience that is the hardest piece is what you said, that separation, that physical separation from your baby.Ā There are more family-centered care practices that help decrease that, like having rooms where families can spend the night.Ā I did see ā thereās one NICU in the United States that created a postpartum recovery room that is attached to a NICU room, which I think is just so incredible, but that is not the norm.Ā That is the piece of it that we just canāt entirely prepare for or totally mitigate.Ā But it is helpful just to understand what that might look like so you can feel a little bit more empowered and in control and become that advocate for your baby, even if youāre in a more unfamiliar environment.
Exactly.Ā So what are your tips for families who have a certain vision in mind and then need to pivot?Ā Letās say with their birth plan, if they didn’t want to utilize pacifiers or wanted to exclusively breastfeed, and then the NICU happened.Ā How can we change our mindset and be able to adapt to what is best for baby?
That is really challenging, and as a NICU nurse, itās something that we kind of come up with ā especially with families, I feel like something thatās happening in birth culture in our country, which is great, is that families are coming in deeply informed and confident in their decisions, but I feel like sometimes it creates this level of rigidity and rejection if things donāt go, as you said, according to plan.Ā And I feel like some of it is very fear-based.Ā Youāre entering into the NICU where, again, a lot of autonomy is taken away.Ā Thereās a lot of unknowns.Ā Itās very kind of loud and chaotic.
But one of the things that I think is the most strong antidote to having those types of feelings is a piece of education, like understanding the why behind certain practices in the NICU, just for my own ā well, Iāll go back to the mindset, but just for people to understand, especially with pacifiers and breastfeeding.Ā One of the things that pacifiers do in the NICU ā the NICU includes for babies oftentimes some more uncomfortable procedures. Ā Not always painful, but uncomfortable.Ā And one of the strongest things that a baby has to be able to decrease those pain receptors and have a positive experience is that sucking reflex.Ā It shows up so early in development, in utero, and they have that in the tiniest preemies in the NICU.Ā They find comfort in sucking.Ā And so for a baby ā yeah, they just need that ability.Ā Itās a tool.Ā Itās not a plug that weāre using to keep the babies quiet.Ā Itās an actual medical soothing tool to decrease the uncomfortable feelings of a NICU stay.Ā So it is a powerful tool in our toolkit.
But kind of just understanding that everybodyās journey is different.Ā No journey is better or worse than the other.Ā The NICU families I work with often ā sometimes feel internally -they have a hard time saying this out loud, but they often have similar experiences of feeling maybe some guilt or shame that they do not need, but they do, about, oh, if only I had prepared a certain way, the NICU wouldn’t have happened, or if only I had made this choice.Ā And that is just not the case.Ā The reality is that sometimes itās hard for babies to go from life inside where theyāre on autopilot.Ā The motherās body is doing everything for them.Ā Then going out and transitioning into the real world ā sometimes they just need additional support, and itās not a reflection on you as a parent.Ā Itās not a reflection on any choices that you made.Ā Itās just a chapter in the journey of becoming a parent, and it can be a very humbling chapter and a really intense one.Ā But one of my favorite things to hone in on is that the NICU is only the beginning.Ā Even if youāre in the NICU for a longer period of time, which some babies, especially those preemies, are in there for weeks to months ā it is still just chapter one.Ā And how you show up in the NICU does not ā youāre doing the best that you can and meeting the needs of your baby, but it doesnāt reflect on all those thousands of hours that youāre going to be continuing to parent them beyond the doors of the NICU.
Absolutely.Ā So for our listeners who may have a known NICU stay that they need to prepare for, what are your tips?
I think that itās very unique to know about a NICU stay.Ā As you said, most NICU stays are unexpected.Ā So those that may have heard from either a prenatal ultrasound or some type of bloodwork or maybe are higher risk for something else going on with your own body ā one of the most important things is to kind of just get comfortable with the NICU youāll be at.Ā A lot of NICUs will offer a NICU tour.Ā They might not advertise it, but nine times out of ten, if you ask, they will let you come in and kind of see it firsthand.Ā Maybe look at the type of bed that your baby will go in.Ā These are what the sounds of the NICU are.Ā You might be able to meet a few nurses or doctors or even just the front desk staff, so you can see a few familiar faces when your baby is admitted.
And then I would ask about specific policies to that NICU.Ā Thereās a lot of common policies and procedures that are pretty universal to most NICUs, but some are a little bit more unique, especially around visitation, like what does it look like to have other visitors other than the parents into the NICU?Ā Do they have sibling restriction?Ā What is their support for breastfeeding?
If breastfeeding is part of your goal and you have a NICU experience, you are likely going to have a longer period of pumping, so if you know that youāre going to have a NICU baby, preparing for pumping prenatally would be huge.Ā Understanding how your pump works, maybe taking a crash course in pumping, getting support from your doula on how that looks like because establishing milk supply will likely be through pumping in those early days and not from direct breastfeeding.Ā Depending on the diagnosis, but thatās often the common factor for many NICU experiences because theyāre just unable to eat either effectively by mouth, or at all if theyāre a preemie and itās just not developmentally appropriate yet.Ā But they do get there eventually.
Exactly.Ā I had to seek help from an international board certified lactation consultant, both in the hospital and home visits.Ā It took a while to go from pumping to breastfeeding.Ā Knowing that there are options after coming home, if you do have goals to breastfeed.
Yes, 100%.Ā There is a whole process that NICU babies go through, and NICU families, with the whole pumping to breastfeeding journey.Ā And having support is key.Ā As you mentioned before with pacifiers, another piece of the NICU experience that can be really hard, especially if you really planned on exclusively breastfeeding or if that was your goal, is introducing bottles much earlier on.Ā Because it is maybe not how ā especially if you took a breastfeeding course, youāre maybe told not to introduce bottles early on.Ā But NICU stays just change it a little bit, and itās a bridge to home.Ā When youāre thinking about bottle feeding skills in a NICU baby, itās a way for them to get into your house, and these babies always do better once theyāre out of the NICU, as long as itās safe and theyāre having that consistent care.Ā But thatās another piece of the journey that is sometimes surprising for families, especially with a full-term NICU stay.Ā Thatās another common misconception, that the NICU is just preemies and you hit 36 weeks and youāre out of the woods.Ā But about 40%-plus of NICU babies are term infants.Ā So itās not uncommon to have full term infants need additional support and monitoring.
Thank you for sharing that!Ā So at Gold Coast, we work with a lot of twin and triplet families.Ā Can you help our listeners navigate potentially different timing for twins and triplets of NICU stays, for example?
Yes, thatās a tricky convo to have sometimes because itās so hard to have a baby in the NICU at all, but to have two demanding humans and then having different timelines can be really hard to navigate, and especially if there is ā often, not always, but more often than not, one twin that is just getting closer to discharge quicker than the other twin.
Exactly.Ā We see that frequently.
More often than not, one baby will go home first. Ā And that can be really hard because you feel even more torn.Ā Your heart is literally living in two different places, but I feel like the benefit that Iāve heard from families who have lived it is that they actually really valued that time home with the first twin and being able to get a flow for at home and understanding what that looks like and really getting to know that twin at home.Ā So then when they get to bring the second or the third or the fourth baby home, they already kind of have a system and they can fit that baby into that system, and itās less, in a way, overwhelming than having both kiddos home at the same time and trying to navigate.Ā Because the transition from the NICU to home can be really challenging because you go from 24/7 nursing care, continuous monitoring, and if you have a question, you can literally ask someone within the first five seconds.Ā Then youāre going home, and youāre kind of figuring it out on your own.Ā Even if you have a great pediatrician and family support and a doula, thereās still some gaps in confidence and rhythm and flow and sometimes having that bridge with multiples with having one and then the other can be great.Ā And most NICUs that Iāve worked in, if there is a twin home and the other twin is still in the NICU, theyāll leave a bassinet at the bedside of the NICU twin so that when the sibling comes to visit, itās easier to still take care of two babies and be there for the one that is still in the NICU.Ā So we try to still facilitate because we know that it can be really tricky to navigate sometimes.
I love that. Ā What are your favorite resources for NICU preparation in that prenatal planning phase?
So my personal favorite ā I have a free NICU birth plan template that anyone can download, if youāre a doula or youāre a NICU family or youāre pregnant or you just have people in your life where youāre listening to this and youāre like, okay, letās talk a little bit about the NICU.Ā Itās just a few questions that you talk through and you ask yourself, basically, about what your preferences are in different scenarios.Ā If you are interested in that, itās on my website.Ā And then there are a lot of other free resources online that can give you a little bit of a snapshot of what the NICU looks like.Ā I also have an Instagram that has a bunch of information there.Ā There are some other YouTube channels and nonprofits.Ā One of my favorite nonprofits is Dear NICU Mama because itās a really strong peer to peer emotional support resource.Ā They just are amazing at building community between families that have gone through it and families that are going through it currently and kind of helping them through that together.Ā It is so needed.Ā Itās just incredible.
Hand to Hold is also a great resource.Ā And Project NICU.Ā If you are a NICU family, two things I love to plug with them is both of them do free mental health support for NICU families, so they partner with either their own therapist teams or through Better Help, and they offer free mental health support for NICU families because statistically, NICU families are just at a higher risk for having postpartum depression, anxiety, OCD, PTSD symptoms.Ā Much higher, statistically.Ā And I think some of that is related to the lack of support and lack of resources, which is the gap Iām trying to fill.Ā But some of it is just because itās a hard experience to go through.Ā Those are just a few resources to dig into.Ā But if youāre someone whoās prone to anxiety prenatally or overthinking things, the NICU can be kind of scary to talk about because itās not something that anyone really wants to experience.Ā The first thing I say to families when I see them at the bedside is, Iām sorry.Ā This kind of sucks.Ā Iām sorry that youāre here.Ā You have to give space for the grief of a NICU experience because it is grieving the loss of the experience that you wish you had as a family.
ButĀ I feel like building a little bit more confidence and understanding of it can decrease the overwhelm of the experience.Ā Not from a place of, oh, I need to know every single thing about every single NICU and I need to do all these things, but just having some foundations to understand it.Ā If you are a NICU family that is going into it and you are a prenatally planned NICU family, I have another resource called The NICU Toolkit which has much more in depth resources of how to birth plan for a NICU stay, NICU one on one, I have a NICU cheat sheet in there.Ā Itās a more comprehensive look at the NICU experience.Ā And for some pregnant people, that might be really interesting, but for others who just want to know the bare minimum, I feel like just having a few questions built into your birth plan is a great place to start.
Excellent.Ā So as far as navigating the family and friend relationship with the big NICU transition, what are your tips for communicating with family members about how they can be helpful and how they may not be able to help in the care for the babies when they get home?
Yes, that is a really important topic to think about, in so many ways.Ā One is that if you are a person who is supporting a NICU family, whether youāre a doula or a family or a friend, know that thereās a few things that I hear universally from families about the support that they wish they had or that they really appreciated having.Ā One is just knowing that people are there but without expectations.Ā So texting someone, saying, hey, Iām thinking about you.Ā If you want to respond, Iām here to talk.Ā You can word vomit, whatever you want, but you donāt have to respond.Ā I see people really pressured to feel like they have to give everybody an update and have all these different things, but the burden should never be on the family.Ā If you are a support person, build a bubble for that NICU family so that they can focus just on taking care of their baby in the NICU, taking care of themselves physically postpartum, because that is so neglected in NICU families.Ā I often see them rolling into the NICU, and they donāt even care that they gave birth.Ā They just care about their baby.Ā But that often can lead to more postpartum complications and difficulties with milk production and breastfeeding because theyāre just not caring for themselves.
So the next big thing is feeding the family, making sure that they have food.Ā Hospital food is not that exciting or healthy.Ā Whatever makes sense for them.Ā Is it Door Dash?Ā Is it GrubHub?Ā Is it going and stocking their freezer so when theyāre taking their baby home from the NICU, they have meals ready to go?Ā Is it coming of the NICU and saying hey, I made you a bowl of chicken soup; here you go.Ā Or packing a bunch of really healthy snacks they can throw in their pumping bag or on the go to and from the hospital.Ā Just making healthy and nutritious but still comforting eating easy for families is huge.
And then just taking care of their life because life doesnāt stop just because theyāre in the NICU. Ā Their other children might need to be picked up from school.Ā They might need their dog walked.Ā They might need their laundry done or their floor vacuumed.Ā Just taking care of life without asking, what can I do to help ā just saying, I am going to help in this way, or just showing up.
But another resource that I just heard about is something called SupportNow.org.Ā Itās almost like a meal train meets Go Fund Me ā like, a registry, and itās the perfect resource for NICU families because it can be set up for anyone and itās a way for people to do updates, too. Ā If you want to do it for updates, you can just post one update on there daily, or not at all.Ā You can put chores on it and people can sign up to walk your dog.Ā You can have a meal train on there.Ā People can donate money if youāre having difficulty with medical bills.Ā Itās a really cool resource that I just learned about, and I feel like itās the perfect fit for NICU families.Ā And itās totally free to use, too.Ā So I recommend that.
And then just showing up emotionally because as we kind of touched on before, thereās a lot of grief in the NICU stay, but thereās also a lot of joy, too.Ā Every family can have those same emotions just minutes apart in the same day, but kind of taking the temperature and being like, are you ready to celebrate?Ā Youāre a mom!Ā You made a beautiful baby!Ā This is incredible!Ā Look, sheās off of CPAP and meeting this milestone!Ā Or, do you want to be sad that you have to deal with this or be angry even, and just showing up in that way, too, holding space for whatever feelings.Ā The thing I hear also that is the least helpful are āat leastā statements.Ā At least youāre in a good NICU.Ā At least you get to go home and sleep at night.Ā Theyāre like, I donāt want to do that, but thank you.Ā All those kind of minimizing statements ā like, a family can say it out loud if they want to, but to have someone say it to them feels very dismissive and hurtful of how theyāre actually feeling and living that NICU stay.
Iām glad you mentioned that.Ā It is so true.Ā
Itās very common, too.Ā I feel like a lot of times people also ā if they have a NICU experience and you donāt understand it, they tend to kind of back away from families and theyāre like, oh, weāll give them space.Ā When theyāre ready ā we donāt want to bother them.Ā But they really still need a lot of help, especially if they have a doula or some other type of postpartum professional, having an understanding of the NICU and knowing how to facilitate bonding and knowing how to talk through emotional support and trauma informed care and connecting with evidence-based resources is so huge for families because they feel like someone gets it. Ā Unless youāve been in the NICU, a lot of times you feel kind of alone and that your story is just so different than other peopleās.Ā You donāt necessarily know who you can talk to about it in a safe way.Ā Itās a key piece of navigating it.
Exactly.Ā So Mary, as you mentioned postpartum doulas and birth doulas, what are your tips, since you do quite a bit of education for maternal health practitioners, to prepare families for a NICU stay or to support families after the birth that are having some difficulties emotionally, as you had mentioned, some of those transitions ā how to be the best support they can be?
I love this so much.Ā I call myself a NICU doula because I am a doula and I support doula work, but I do it with a specialized lens, understanding the unique needs of NICU babies because they are different than a āregularā baby.Ā Theyāve experienced a different experience.Ā Even if itās a short stay, it still changes that postpartum trajectory for both the family and the baby.Ā So one of my passions is creating a whole network of NICU-informed doulas who can speak to this for families.Ā So again, it decreases both the stigma of a NICU stay, the overwhelm of it, and potentially even the trauma.Ā So I have a shorter two-day course called Navigating the NICU for Doulas, and then Iām building a full comprehensive NICU doula certification program that should be out in 2025, which Iām super, super excited about.
But just in terms of some tangible tips, if you work with families prenatally, even just talking about it a little bit can do so much to decrease the overwhelm because our NICU families in general ā theyāve picked their doula.Ā Theyāve made an active selection of who this person is in their life and inviting them in, so they have so much trust in the doulaās opinions and resources and thoughts.Ā So if they have never mentioned ā if youāre a birth doula and youāve never even mentioned the NICU but the NICU happens to your client, theyāre going to be kind of shook by it.Ā Theyāre like, well, we didn’t even talk about this.Ā I must be so other.Ā I must be so not the norm.Ā But statistically, if you have 20 birth clients a year, at least 2 of them are going to haveĀ NICU stay.Ā So even just taking that free template that I have and building it into a conversation and speaking about it can just decrease the stigma and the overwhelm and just kind of frame it in a different way so that it doesnāt have that same type of disruptive feeling for a family from the prenatal space.
And then during ā if you are supporting during a birth experience, helping with that logistical support is key.Ā Being that person to organize support so that you decrease the mental load and the burden of it can also be extremely helpful.Ā Someone just taking the lead, because sometimes ā especially if you are a grandparent of a NICU baby or a sister, or your sister is having a NICU experience ā itās very emotional for them, as well, to be worried about this baby and be thinking about them.Ā So theyāre not always in a place to kind of see the bigger picture and organize support.Ā I feel like a doula can play a super important role in that piece of things.
And then during the transition to home, understanding a little bit more about what makes NICU babies unique.Ā What, maybe, about their NICU stay changed ā a lot of times, what Iāll see is NICU babies have processed the sensory world differently. Ā It doesnāt stay forever, but the NICU is kind of a chaotic environment.Ā We try to do our best to create neuroprotective kind of pockets of care, but in general, itās still a medical setting.Ā Itās still a hospital.Ā Sometimes babies coming home have a lot more sensitivity to stimuli. Ā This can look like tummy troubles.Ā It can look like grunting and groaning and reflux.Ā And it can look like disruptive sleep patterns and things like that.Ā So just understanding the why behind this is happening can be really helpful for talking with families because it doesnāt quite normalize it, but it makes it feel like, okay, I get whatās happening.Ā Now letās get to the root cause of things thatās unique to that baby, so then we can help kind of make it better and use our tips and tricks to kind of mitigate some of those symptoms that babies come home with.
But just having an understanding of both the NICU experience, what that looks like, and then having a bigger radar for mental health symptoms in working with families.Ā Because Iāll see sometimes doulas talking about working with a family, and theyāll say, you know, maybe they had an emotional outburst towards them, or they were really rigid in how they wanted their baby to be cared for.Ā And while no family should ever speak to a doula in a way thatās not appropriate ā you have to maintain that ā but I can see where some of these families are coming from if a NICU stay was involved.Ā The NICU is very scheduled.Ā It has a lot of rules to follow, and a lot of these families, you saw your baby struggle.Ā You saw a piece of ā not the worst nightmare, but you saw it happen.Ā It wasnāt theoretical.Ā It happened.Ā So a lot of times when families transition to home, one of the biggest things is they never want their baby to be uncomfortable again, and sometimes that can manifest in more postpartum anxiety or OCD type symptoms.Ā So being on the lookout for it and just kind of being aware about it and having an extra level and layer of compassion and support and knowing what resources to send families to so if they do need additional help and support, you have kind of a toolkit for your community about where to send families to.
Excellent.Ā And one of the benefits of having a birth doula with an unknown NICU situation when baby needs to go to the NICU with a partner, the mother is not alone, and we can help support emotionally, come up with a feeding plan, talk through what a NICU stay is like.Ā With your education for doulas, we can be even more informed in our own trainings and personal experience with supporting families.
Yes, thatās one of the questions in the birth plan.Ā If you were going to have a NICU stay and your baby is being separated, who goes with baby and who stays with you, and what does that look like?Ā Thatās another thing that I see families.Ā When baby needs to go to the NICU, whoās coming, or is anyone coming, and everyone is just looking at each other, like I donāt know, what do we do?Ā I donāt know, what do we do?!Ā So even just thinking about that is huge.Ā But yes, birth doulas especially ā youāve already formed that relationship with a family.Ā You already have an idea of what their preferences and goals are.Ā So you can also, once you have a much more comprehensive understanding of what the NICU is like, just like you have a good understanding of what labor and delivery looks like and all the different policies and procedures within that ā you can help advocate for your clientās preferences for the postpartum experience within a NICU setting just as you would within a more typical postpartum experience.Ā So just being able to be that source of comfort, being that source of, someone knows me and theyāre just here for me and my baby.Ā Theyāre not here for anybody else.Ā They know me and theyāre here to support me.Ā The relief of that is just so amazing to see.Ā Iāve seen doulas come down into the NICU, and those families feel supported in a different way, especially if that doula has NICU knowledge.Ā But on the flip side, Iāve had some of my post-NICU clients say that they had a birth doula, and they had a NICU stay, and they felt very abandoned by their doula because the doula just didn’t understand or feel confident in their care or didn’t even know what to say.Ā So just as I said before, they kind of backed away because it was out of their comfort zone.Ā But these are the families that need the most support, and I know as doulas, we all just want to ā the reason we got into this work was to show up for families in a way that maybe they arenāt able to have without our support, so having that extra layer of NICU knowledge and evidence-based tools and guidelines and understanding how the NICU works is just so essential for being able to care for all of your clients, no matter what the birth outcome is.
Exactly.Ā Iām so thrilled to have you train our team shortly so we can better support our families with resources and the empathy that is required in this time that has many different transitions.
Iām so excited!Ā I feel like the more Iāve had doulas go through these trainings and learn all these different tools and support guidelines ā I feel like I can almost feel the NICU narrative shifting.Ā I think that doulas are truly the missing link to having a more family centered, positive experience for families, and I just canāt wait to see the power of this education and this shift in the NICU experience for families.
Agreed!Ā Thank you for making this change!Ā Itās exciting.Ā Any final tips for our listeners, Mary?
I think that I wanted to just circle back.Ā I know that the NICU can be a heavy topic and this can be kind of triggering for some people, but I wanted to just emphasize that if you are a pregnant person or a parent, your baby is so lucky to have you, and you are the best expert in your babyās care.Ā You can have support, and the NICU can feel very overwhelming and intimidating, but you still know your baby best. Ā You still know your family best, and you are just the most important part of your babyās experience, and the NICU is just the beginning. Ā Thereās so much joy and so much love ahead.
Excellent advice!Ā So how can our listeners connect with you?
Sure!Ā I am on Instagram a lot.Ā Iām @thenicutranslator.Ā I also have a website, The NICU Translator.Ā Thatās where you can get a lot of my free resources.Ā I have a blog there.Ā You have that free birth plan template.Ā I have a free discharge checklist.Ā And thatās also where you can learn about the upcoming sessions of navigating the NICU for doulas.Ā You can work with me one on one as a NICU family.Ā I work as a virtual post-NICU doula, so I help facilitate the transition from the NICU to home. Ā And if you have any questions, you can just email me, hello@thenicutranslator.com.
Excellent!Ā Thank you so much, Mary, and weāll have to have you back on to chat about life after the NICU.
I would love that!Ā That sounds amazing!
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